Preparing Youth for Adult Care

Successfully transitioning youth with inflammatory bowel disease (IBD) from child-centred to adult-centred healthcare systems is key to preventing harmful effects on their health and life outcomes. However, an agreed upon process for transitioning youth to adult care does not exist in Canada.

Starting in 2020, Dr. Eric Benchimol, Dr. Natasha Bollegala, Dr. Melanie Barwick, at the University of Toronto, and Dr. Nancy Fu, at the University of British Columbia, are leading the design and review of a process that supports youth as they transition to adult care.
Support for youth transitioning out of a child-centred healthcare setting includes:

  • tools and skills to communicate on their own to their healthcare team;
  • confidence to ask for what they need;
  • knowledge to understand the adult-centred healthcare system; and
  • the building of a good relationship with their healthcare team in the adult-care setting.

In addition, a national transition care plan provides an opportunity to collect data about the best way to deliver transition services, with the goal of improving healthcare across Canada.

Group of adults working together

What is a working group?
A group of experts gather together to answer and report on a specific question, and make recommendations. 

The team organized a working group of national and international experts, including pediatric and adult gastroenterologists, IBD nurses, an implementation scientist, patient partners, parents, caregivers, child and adolescent psychologists, and other transition care experts who:

  • designed the transition care plan;
  • identified metrics and outcomes that should be collected in the pilot test to determine how well the plan works; and
  • developed a process to introduce the transition care plan in clinics across Canada.

The finalized transition care plan will undergo pilot testing at IBD Centres of Excellence across the country.

Support the PACE Network

Donations to Crohn’s and Colitis Canada allow the PACE network to carry on its vital work and continue to find solutions to improve IBD care.


Contact Information

To learn more about the PACE network, please contact

The PACE network is supported by Crohn’s and Colitis Canada and our funding partners:

Woman talking to physician over tablet
Woman talking to physician over tablet
Woman talking to physician over tablet
Woman talking to physician over tablet
Woman talking to physician over tablet

  • Canada has among the highest incidence rates of Crohn's and colitis in the world.
  • 1 in 140 Canadians lives with Crohn’s or colitis.
  • Families new to Canada are developing these diseases for the first time.
  • Incidence of Crohn’s in Canadian kids under 10 has doubled since 1995.
  • People are most commonly diagnosed before age 30.

Other Areas of Interest