If Your Child has Crohn’s or Colitis

Having a child with Crohn’s disease or ulcerative colitis can be an emotional rollercoaster. It is hard to explain to someone so young why they do not feel well. It can also be hard on you, as a parent, to cope with seeing your child ill and dealing with the complications that go along with these diseases. It is important to fully understand the disease to help your child cope.

To find out more information on specific topics click below or visit the Brochures section of our website.

  • Signs and symptoms

    Crohn’s and colitis can be very hard diseases to diagnose, as symptoms vary from patient to patient. Unlike many other diseases, they are “invisible.” In fact, due to the side effects of certain medications, your child may even appear to be robust and healthy. In some ways, this makes it more difficult because his or her health challenges are not as obvious as someone who might be in a cast or sling.

    Some signs you should watch for are:

    •  Fatigue
    •  Diarrhea (possibly bloody), often frequent or urgent
    •  Abdominal pain
    •  Cramping
    •  Gas and bloating
    •  Loss of appetite
    •  Weight loss
    •  Delay in growth

    Currently, there is no known “cure” for Crohn’s or colitis. However, there are several strategies to combat symptoms and inflammation such as the use of medication, diet and nutrition, and surgery.

    To find out more about the signs and symptoms please read our brochure Surviving and Thriving.
  • Medication

    In general, there are two kinds of medicine used to reduce symptoms and inflammation in children with Crohn’s and colitis: drugs that are used to reduce inflammation (and therefore may reduce symptoms) and drugs that are aimed at symptom reduction. There are five types of drugs used to combat inflammation: Sulfasalazine and 5-ASA, Steroids, Immunomodulators, Biologicals, and Antibiotics. Each kind of drug reduces inflammation in a different way. 

    Drugs that are used to reduce symptoms can generally be purchased “off the shelf” in your pharmacy. However, it is important not to self-prescribe, and to be sure to discuss options for your child with your doctor. Some examples include: antidiarrheals, ointments and suppositories, antispasmodics, bulk formers, bile salt binders, stool softeners, analgesics, acid reducers, nonsteroidal antiinflammatories, and vitamins and minerals. To find out more about the different medications used for Crohn’s and colitis, check out our brochure.

     

  • Diet and Nutrition

    It is important that your child has a well-balanced diet, but it is important to pay special attention to your child’s diet if he or she has Crohn’s or colitis.

    • Malnutrition may occur from not eating or the lack of absorption in the gut.
    • You may be advised to provide your child with supplements including minerals and vitamins if they are not absorbed from food.
    • Watch out for “trigger foods.” Current research shows that what your child eats does not CAUSE a flare-up, but may exacerbate symptoms if he or she does eat foods that aggravate the gut. Identifying those foods which are triggers for your child is an important part of your day-to-day strategy in helping them live with Crohn’s or colitis
    • It is also important to identify what her “safe” foods are, which are foods that are unique to her and do not appear to bother her digestive tract. Some people find the BRAT diet helpful when in a flare-up (bananas, white rice, applesauce and toast)
    • Your child may be willing to accept a liquid supplement when regular food is unappealing to them, which offers balanced nutrition and give your child’s gut a chance to rest as they are easily digested


    To find out more about diet and nutrition, please read our brochure Food for Thought.

  • Enteral Feeding

    Enteral feeding is another strategy used as a primary therapy to treat Crohn’s disease or as a secondary treatment for malnutrition and growth failure. A nasogastric (NG) tube is inserted down your child’s nose into his stomach. A medicinal food supplement is then administered through the tube. This tube can be removed or tucked behind your child’s ear during the day if they feed at night. 

    Enteral feeding may last from one to three months if all of your child’s nutritional needs are being met this way. Some children choose to have a stomach tube (gastrostomy) for nocturnal feedings instead of an NG tube if they are suffering from extensive malnutrition. 

    If a child is acutely ill and unable to get adequate nutrition either by mouth or enteral feeds, it may be necessary to place her on total parenteral nutrition (TPN). In this case, liquid nutrition is administered through an intravenous site (rather than through an NG tube).

    To find out more about enteral feeding, please read our brochure A Parent's Guide

  • Surgery

    Surgery for Ulcerative Colitis 

    Removal of the large intestine and rectum (colectomy) may be recommended as a treatment for severe cases of ulcerative colitis. Because the rectum is gone and thus the passage for feces has been removed, a surgeon may have to create an ileostomy (connection of the small bowel to the exterior of the body). An ileostomy uses a bag (otherwise known as an ostomy appliance) attached to the skin of the abdomen to collect expelled feces.

    In some cases, surgeons can convert an ileostomy to an ileal pouch anal anastomosis (an IPAA, also sometimes referred to as a pelvic pouch). For those who are eligible for this surgery, the IPAA offers a high degree of satisfaction because a pouch for collecting feces is made inside your body and stool continues to be expelled though the anus rather than into an ostomy bag.

    Surgery for Crohn’s Disease

    Because Crohn’s disease can involve any part of the GI tract, there are many varied surgical treatments. If you have acquired an abscess, stricture, or obstruction, a resection (removal of all or part of a section of the gut) may be required to repair the problem. In some cases, a strictureplasty can be done to open up a narrowed segment of the intestine. As with colitis, a colectomy and ileostomy are possible surgeries.

    The IPAA is not usually performed on patients with Crohn’s because, unlike colitis, the disease can recur after the procedure is done. This necessitates further surgery and potentially the removal of the internal pouch. 

    In addition to bowel­-specific surgery, patients with Crohn’s can also have surgery to treat problems associated with complications of the disease. For example, if you have developed a fistula, there are procedures available to reduce the pain and pus. 

    Laparoscopic Surgery

    Minimally invasive surgery, or laparoscopic surgery, is performed through small incisions in the abdomen with the aid of special instruments and a camera. Because of the smaller scars, younger people find the prospects of this surgery more appealing than “open surgery.” In addition, healing time is faster and there is less post­-operative pain. 

    Unfortunately, not all people with Crohn’s and colitis are candidates for laparoscopic surgery, usually because of extensive scarring (adhesions) within the abdomen or because the disease is so extensive that a wider field of view is needed than that offered by the scope.

    To find out more about surgical treatments/options, please read our brochure The Cutting Edge.

  • The Emotional Roller Coaster

    It is hard for any child to have to go through a life-changing illness. However, with your support and the proper management of the disease, your child will have many opportunities to be just like other kids. This concept is important to children, as they fear exclusion or being different. We encourage you to get your child involved in hobbies and sports. When their Crohn’s or colitis flares up, encourage him to participate in activities that are less active in nature, but nonetheless keep them engaged and occupied. This is important for their wellbeing.

    Friends are a very important aspect of any child’s life. Your child may wonder what to tell their friends about their disease, or if they should say anything at all. After all, Crohn’s and colitis are difficult to explain and the fear that some of the other children may be thoughtless and cruel after such a discussion may only make your child feel more vulnerable. This is an area where you, as a parent, should respect their decision and support them in their choices. If they want to share their diagnosis with friends, then by all means assist them in explaining what the disease is all about. If they prefer to keep their condition private from their friends, respect that choice whenever possible. 

  • Summer Camp for Kids with Crohn's or Colitis


    Crohn's and Colitis Canada has made the summer camp experience available for kids with ulcerative colitis and Crohn's disease. Camp Got2Go is a great experience that creates lifelong friends and memories while helping kids learn to live with the challenges of inflammatory bowel disease.

    Find out more at campgot2go.ca
  • Transitioning to Adulthood

    Making the transition to adulthood is a particularly challenging time for both kids and their parents. Some go off to school, leaving both the familiar home AND medical teams. All transition from pediatric care to adult care at some point, becoming more responsible for their own health decisions, medications – all while facing the challenges of post-secondary education, new jobs and careers, relationships and possibly families. Crohn's and Colitis has resources to help. Please check out this video below for more information:

  • IBD Scholarships program

    Crohn's and Colitis Canada, with support from AbbVie, are proud to help post-secondary students (of any age) continue their education with the AbbVie IBD Scholarships. The schedularships provide support of up to $5,000 to ten students attending school in Canada.

    Find out more at ibdscholarship.ca

  • Other Information and Resources

    Additional tips for helping your child cope with Crohn’s or colitis:

    - Depression may occur if your child is older and their self esteem and body image are fragile.

    - Be alert to any signs that your child is withdrawing or having difficulties coping with school, friends and activities.

    - Don’t be too hard on yourself or on other members of your family as you work through these challenges together.

    - Crohn’s and Colitis Canada has local chapters across the country, which will allow you to access information that will enable you to help your child. You will meet other parents who are learning how to support a child with Crohn’s or colitis, and, in many cases, other youth who are living with these diseases.

    - It is natural for a parent to feel very protective of a child with Crohn’s or colitis; however, be careful not to overdo it. In fact, it is wise to encourage your child to assume responsibility for their medical routines as soon as they are mature enough to handle it.

    - Remember that Crohn’s or colitis does not define your child. The disease may be a part of their life, but they are so much more than their diagnosis.

    - To help your child's teacher(s) better understand Crohn's or colitis, and understand why accommodations for your child may be needed, our Teacher's Guide and Letter to Your Child's School can both be beneficial.

    - We’ve created thank you certificates that kids and youth can fill out and present to their Crohn’s and colitis heroes. Download the fillable PDF certificates below:

    Thank You Certificate – Kids
    Thank You Certificate – Youth

  • Canada has among the highest incidence rates of Crohn's and colitis in the world.
  • 1 in 150 Canadians lives with Crohn’s or colitis.
  • Families new to Canada are developing these diseases for the first time.
  • Incidence of Crohn’s in Canadian kids under 10 has doubled since 1995.
  • People are most commonly diagnosed before age 30.

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