Listening and Discovery Focus Group

Join a Crohn’s and Colitis Focus Group to help us Modernize Volunteer Engagement! 

You may have heard that one objective of our 2023-26 impact strategy is to modernize employee and volunteer engagement. Crohn’s and Colitis Canada recently started a listening and discovery process with volunteers and community members to learn their perspectives on meaningful volunteer engagement.

As part of this process, we are conducting focus groups with young adult patients, and Francophone and South Asian patients and caregivers who do not currently volunteer. As an organization, we want to improve engagement and relationships with these groups – with focus groups on volunteerism being one way to approach these improvements.

We invite you to express interest in a relevant focus group before June 5! All selected participants who attend these focus groups will receive a $50 e-gift card as a token of appreciation after the events.

Focus Group for ... Language of Focus Group Facilitation Date and Time
Francophone IBD Patients and Caregivers

Sign up:
French Wednesday, June 21 at 7pm-8:30pm Eastern
South Asian IBD Patients and Caregivers

Sign up:
English Thursday, June 22 at 8pm-9:30pm Eastern
Young Adult IBD patients

Sign up: 
English Tuesday, June 27 at 7:30pm-9pm Eastern

Please know that every active and former volunteer will have an opportunity to help Crohn's and Colitis Canada shape how we modernize volunteer engagement via upcoming surveys (available in both English and French).

If you have any questions about these focus groups or the listening and discovery process, please email Jessica Pang-Parks, Director, Volunteer Engagement and Innovation at or call 1-800-387-1479 ext. 305.

Information on Focus Group Data Collection
Focus groups will be recorded for data analysis purposes. The data will be analyzed as a whole and ideas will not be attributed to specific individuals in this focus group. Any direct quotes that we will share in our reporting will not be linked to your name. The data will be reported to the Volunteer Engagement Discovery Committee which has two unique mandates: (1) to provide advice on the listening and discovery process, ensuring that relevant stakeholders' voices are represented and that the process is rooted in volunteer and community feedback, and (2) to collaborate on recommendations to the Board of Directors of Crohn's and Colitis Canada that will encompass topics that include, but are not limited to, future volunteer engagement models, programs, and structures that generate many meaningful volunteer opportunities to support our promise.

  • Canada has among the highest incidence rates of Crohn's and colitis in the world.
  • 1 in 140 Canadians lives with Crohn’s or colitis.
  • Families new to Canada are developing these diseases for the first time.
  • Incidence of Crohn’s in Canadian kids under 10 has doubled since 1995.
  • People are most commonly diagnosed before age 30.

Other Areas of Interest